Anyone else get tearful less than 24h after missing a dose of Vraylar?
Welcome to our supportive Peer-Support community, where we come together to share our experiences with Bipolar Disorder. We are a haven for people with Bipolar Disorder (including Cyclothymia and Schizoaffective Disorder) and those on their journey towards a diagnosis to discuss Bipolar-related issues; a community, not just a help page. Be a part of something that cares about who you are. Join us in our discussions, share your story, and let's support each other.
Anyone else get tearful less than 24h after missing a dose of Vraylar?
Welcome to our supportive Peer-Support community, where we come together to share our experiences with Bipolar Disorder. We are a haven for people with Bipolar Disorder (including Cyclothymia and Schizoaffective Disorder) and those on their journey towards a diagnosis to discuss Bipolar-related issues; a community, not just a help page. Be a part of something that cares about who you are. Join us in our discussions, share your story, and let's support each other.
[hyperPOTS] My ADHD-PI needs stimulants to function but the POTS-related crash is miserable. I have hyperadrenergic POTS, which is contraindicated for stimulants. However, I’m not functioning at all. I can barely get through the day let alone go to school or have a job. Advice?
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
[Ohio] How to find/consult a divorce attorney when legally disabled with no income? Possible financial abuse.
A place to ask simple legal questions.
I’m 32. I think I need to divorce & start over. In addition to CFS, I also have POTS, autism, adhd, dyslexia, and right hand paralysis. Because I never worked, I don’t qualify for SSDI, only SSI. How can I make a life for myself in this economy?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
A couple months ago, I started forgetting celebrities’/acquaintances’ names and words. I have ADHD, but this is new. I’m only 32, so the thought of lifelong progressive memory issues scares me.
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Feeling like I would rather die by suicide than try to divorce my asshole spouse and face future climate and economic crisis while living alone on SSI.
A place of support for those living with, or affected by, chronic illness. Open and welcoming to all. This subreddit is for social and community support, not medical advice.
I kind of just want to give up.
Memes and support for those with CPTSD
By the time I had received my ASD diagnosis, my OCD had mellowed out to the extent that my formal OCD diagnosis disappeared from my chart. Now that I’m living in an old house that isn’t super clean, my health and contamination OCD are debilitating.
A subreddit dedicated to discussion, articles, and support regarding OCD. Please read below for more information and resources about about OCD and the subreddit.
MECFS adjacent symptoms: Have a POTS dx, but feel like I have hyperadrenergic POTS but neuro won’t evaluate me for it bc catecholamine testing can be tricky & says that POTS subtypes aren’t accurate. Regardless, I think that my adrenaline is extremely high when upright.
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Have a POTS dx, but feel like I have hyperadrenergic POTS but neuro won’t evaluate me for it bc catecholamine testing can be tricky & says that POTS subtypes aren’t accurate. Regardless, I think that my adrenaline is extremely high when upright.
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
I have a POTS diagnosis but I want a second opinion on possible related diagnoses and medications. Any recommendations in Ohio outside of Cleveland Clinic? Any remote specialists with feasible private pay rates?
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
Does anyone know of MECFS personal coaches, therapists, occupational therapists, etc? Maybe even a simple program/structured advice available on Patreon or Discord?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Do you ever just feel confused or disheartened when different specialists give you different diagnoses for the same symptoms? Or no answers at all?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
How many GES or smart pill/capsule endoscopy studies did it take before you were diagnosed? How many years from first onset of symptoms?
Gastroparesis is a condition that affects the ability of muscular contractions to effectively propel food through your digestive tract, resulting in delayed gastric emptying. Gastroparesis is typically diagnosed via a gastric emptying study (GES) and is thought to be a condition belonging on a spectrum shared with functional dyspepsia (FD) rather than being a totally separate disease. See the Megathread for more info and join our Discord today (link in comments).
I feel like I’m emotionally back where I started when I was a kid, exasperated because I don’t have disability supports and don’t know how to live my life, but at least now my family and doctors agree that I’m disabled?
Memes and support for those with CPTSD
[venting] Considering the state of the economy, climate change, disability welfare programs falling behind and under constant budget threats, my very limited support system, and my inability to work, I really need to deeply assess whether or not it is safe to pursue a divorce.
News, resources, and perspectives pertaining to individuals with disabilities.
I know that working an office job isn’t romantic, but I often wish I had simple office job instead of being incapacitated in my bed. Maybe have a few office friends. Go out a few times a month. Wear cute work clothes. Have a LinkedIn account showing the college degree I could have finished.
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
[comorbidities] I have POTS + a (vaguely diagnosed?) HSD. My primary care doctor thinks I should try a pain rehab program, if possible. I don’t agree. Any advice or alternatives?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Recommendations for therapists who work with CFS/Disability grief?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Lying in bed in the dark while surfing on my phone is almost the only way I can tolerate my extreme fatigue, pain, discomfort, and dysautonomia symptoms. I average 10 - 12 hours per day on my phone. It is a tool that helps ground me, but I need real treatment and real help.
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
What are the realities of divorcing or staying in a toxic marriage if you are disabled and cannot work? Should I be realistic and stay? Is emotional & financial abuse better than poverty?
News, resources, and perspectives pertaining to individuals with disabilities.
I wish that I could finish undergrad. Have any of you been able to complete online courses while laying down in bed?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.