I get tearful less than 24h after missing a dose of Vraylar. Relatable?
Anyone else get tearful less than 24h after missing a dose of Vraylar?
+2 years of pain & retaining food sometimes: gastric tests were inconclusive and gastroenterologist is clueless. Cleveland Clinic refuses to let me see the gastroparesis gastroenterologist because I don’t have a diagnosis.
[hyperPOTS] My ADHD-PI needs stimulants to function but the POTS-related crash is miserable. I have hyperadrenergic POTS, which is contraindicated for stimulants. However, I’m not functioning at all. I can barely get through the day let alone go to school or have a job. Advice?
Dating with Cfs
I’m 32. I think I need to divorce & start over. In addition to CFS, I also have POTS, autism, adhd, dyslexia, and right hand paralysis. Because I never worked, I don’t qualify for SSDI, only SSI. How can I make a life for myself in this economy?
Discord for level 2 and Level 3
[Ohio] How to find/consult a divorce attorney when legally disabled with no income? Possible financial abuse.
A couple months ago, I started forgetting celebrities’/acquaintances’ names and words. I have ADHD, but this is new. I’m only 32, so the thought of lifelong progressive memory issues scares me.
Cfs research
Feeling like I would rather die by suicide than try to divorce my asshole spouse and face future climate and economic crisis while living alone on SSI.
I kind of just want to give up.
Has anyone been to the Mayo clinic or Cleveland clinic for pots and/or other comorbidities?
Do You Experience an Increased Startle Response?
By the time I had received my ASD diagnosis, my OCD had mellowed out to the extent that my formal OCD diagnosis disappeared from my chart. Now that I’m living in an old house that isn’t super clean, my health and contamination OCD are debilitating.
Have a POTS dx, but feel like I have hyperadrenergic POTS but neuro won’t evaluate me for it bc catecholamine testing can be tricky & says that POTS subtypes aren’t accurate. Regardless, I think that my adrenaline is extremely high when upright.
MECFS adjacent symptoms: Have a POTS dx, but feel like I have hyperadrenergic POTS but neuro won’t evaluate me for it bc catecholamine testing can be tricky & says that POTS subtypes aren’t accurate. Regardless, I think that my adrenaline is extremely high when upright.
I have a POTS diagnosis but I want a second opinion on possible related diagnoses and medications. Any recommendations in Ohio outside of Cleveland Clinic? Any remote specialists with feasible private pay rates?
Does anyone know of MECFS personal coaches, therapists, occupational therapists, etc? Maybe even a simple program/structured advice available on Patreon or Discord?
Anyone here have chronic intense pressure/fullness in their throat, face/head, and cervical spine/back of neck? Any insight?
When I'm going through a flare-up and want a Starbucks but all my favorite Starbucks drinks are caffeinated so I just have to drink my liquid IV and sulk instead
Do you ever just feel confused or disheartened when different specialists give you different diagnoses for the same symptoms? Or no answers at all?
How many GES or smart pill/capsule endoscopy studies did it take before you were diagnosed? How many years from first onset of symptoms?
Day 1 after ketamine therapy for PTSD
