Other young people?

Anyone else here who got sick really young (school aged) just feel like they never even got the chance to live? I never got to move out of my parents home, never got to have a real job, never got to have adult romantic relationships, etc. Just no basic life experiences that seemed promised, and no future to imagine. Watching your friends grow up and have careers and spouses and drift away just highlights that. Not to mention how daunting picturing ~70 years of “life” like this is, both emotionally and practically (literally like where do I live and who takes care of me after my parents pass?? Who will I even speak to?)

I just can’t wrap my head around this in any way.

Edit: Please any one of any onset age keep commenting! I’m realizing “young” is still quite a range. Hopefully we can all hear from people with similar experiences, as I personally haven’t seen this topic come up much