Beware of NHS ME/CFS clinics

The NICE guidelines for treating ME have changed, but the people running the clinics are the same idiots who have been harming patients with GET and CBT for decades and fought hard against the new guidelines.

The new guidelines state that CBT may not be offered as a cure, but may be used to “manage symptoms” whatever the fuck that means. This phrasing is so vague it allows them to push a watered down and rebranded version of GET+CBT they call “pacing up”. She basically told me that I will improve my baseline if I find how much I can do without crashing then increase my activity in very small increments.

The ME patient associations only claim that pacing will allow you to maximise your activity within the confines of your current baseline while also reducing the chances of getting worse and increasing the chances of improvement.

I frequently discourage others from talking about on the psychosomatic crowd as it just makes us all angry, but this is something people need to know about.