27F & almost hoping that I DO get a diagnosis…
I feel like a terrible person for even thinking this way.
I just feel so unwell and i’m so beyond tired of it, not having any answers as to why I feel the way I do is making me depressed. I can’t go a day without crying out of frustration because it feels like i’m fighting my body to move. I came here after folding my laundry just now which ended in tears because my arms were on fire. I came here because I just need to vent my frustrations. I’m not sure if anyone will read this because it’s going to be lengthy but if you do, thank you. I feel so ignored and alone with all of this.
I have a ca-125 blood test booked for the beginning of Feb, I have a pelvic exam scheduled for next week and regardless of what that shows i’m going to push for a internal ultrasound. It’s highly likely given my family history that I carry the BRCA gene; with many of the women in my family being diagnosed between their late 20s - early 40s.
My symptoms & their timeline:
Nov 2023 is when I started to feel very sleepy, no amount of rest would help me. Had a sleep study and was just told I have a delayed circadian rhythm which never really gave me any answers as to why I never felt rested.
May 2024 abdominal pain in the upper right side. It was extremely painful but did eventually resolve, I was convinced it was gallbladder issues but abdominal ultrasound showed everything was fine.
also May 2024 slow but steady weight gain even though I eat a very balanced diet. I’ve also pretty much lived my entire life on the OMAD diet, very rarely snacking.
June 2024 INDIGESTION. Oh my god, the indigestion. I love gaviscon more than anything in my life at this point. I’m still taking it daily even now.
July 2024 periods started to become irregular but only by a few days so I just didn’t really think much into this. My 28 day cycle that I’ve had for the last 15/16 years is now more like 33 days.
Aug 2024 and my right shoulder started aching, assumed that I must’ve slept funny even though I never really sleep on my right side.
also Aug 2024, really sharp pain in ovaries whenever I sneezed or coughed. A take your breath away kind of pain but it would only last 5-10 seconds at most so it was easy to just ignore this.
Nov 2024 went to the DRs about my shoulder pain because it was now accompanied by lower back pain, upper leg weakness and shortness of breath - x-ray booked for the following week.
I had my x-ray and cried walking back to my car because I was so out of breath, nauseated and dizzy because of how tired I felt. I felt so unwell that I booked a DRs appointment the following day about my symptoms again and expressed my concern that something serious could be going on. Was told I was 27, too young to possibly have anything wrong with me. Left the appointment crying and ended up just taking myself to a&e. Focused heavily on the shoulder pain so had another shoulder x-ray, FBC and bloods to check my heart. All ok. I decided I just needed to wait whatever this was out and hope I felt better.
- That brings us up to present day, all symptoms still present and no better. I am on cycle day 43 now and no signs my period is going to come anytime soon. Back pain is horrific from the moment I wake up, gets worse as the day goes on. Hobbling around like a 90 year old woman by the end of the day. Shoulder still hurts. Urinating frequently and the FATIGUE!! I’m constantly out of breath from doing the simplest of things like putting my socks on and I feel like i’ve ran a marathon every. single. day.
I’m bloated, at the heaviest weight i’ve ever been in my life (140lbs - i’m 5ft 1 so this is considered overweight) and I have started to get nosebleeds when i’m over exerting myself, and by over exerting I mean stuff like getting myself dressed too quickly.
If someone offered me £1,000,000 right now or to feel normal again, i’d pick the latter.