Genetics ? Rheumatology? Help

So upon bringing the hEDS diagnostic criteria and the book “Disjointed,” to my latest appointment, my PCP agrees it sounds like I have POTS and hEDS, but he felt uncomfortable diagnosing hEDS since it’s outside of his wheelhouse of high blood pressure / diabetes / easily diagnosed things haha. He scheduled an Echo (it was normal) and referred me to genetics to rule out cEDS and vEDS, but they won’t see me because I’m suspected of having hEDS and they won’t take hypermobile patients. What do I do now??