What do you experience right before having a seizure?
Hi everyone, please be patient with me as I am incredibly recently diagnosed with epilepsy (only got diagnosed at the beginning of 2025). I’m 23F and was diagnosed a few months after being in status epilepticus when I first had a seizure at 22. I hardly remember anything that came before my first seizure. content warning but I also hit my head and was put in a medically induced coma, so it’s really a blur. Apparently when I was in the hospital, I told the nurse and doctor that I remembered seeing “flashing lights” right before it happened, and also mentioned seeing stars.
That was in September and I haven’t had a seizure since (I’m on a super high dose of an antiseizure med). I sometimes experience things though where I feel like it’s preceding a seizure. Like today, I felt my vision randomly go extremely foggy and I was in a state of derealization. I also have times where I do see stars or think I see things that aren’t really there. Those who feel comfortable sharing, what have you experienced before having seizures before? I want to know what to look out for to best keep safe. I am honestly terrified of getting another TBI. The first time I had a seizure I had no idea it was coming