Severe ADHD

Is there a community anyone could recommend for those of us with severe ADHD. You'll know who you are because your life will have been destroyed (in amongst some epic achievements no doubt) and you feel almost isolated by the coping ability of the rest of the ADHD community. You might question whether you have some form of dementia and you will have suffered the intense frustration of hyperfocus allowing glimpses of your 'potential' then struggling to replicate. You will have horrible/inconsistent long/working and short term memory problems, struggle to form and maintain any routine etc. I felt like I was alone amongst ADHD people because none of them were as bad* or understood the severe impact it has on my ability to just function. If your symptoms are so bad, you feel so alone even in the community which is supposed to represent you, are there any other specific communities you have found that you could recommend to me? Thank you

*I want to point out that I am referring to those with severe functional impairment that is resistant to treatments or therapies, rather than severity as an indicator of suffering. Please don't take this post as an invalidation of anyone's struggles.